After I broke my leg last year, I developed axonal polyneuropathy. This was diagnosed after I underwent Complex EMG (Electromyography) and Nerve Conductivity tests at King’s College Hospital in June 2024. This was followed up with a consultation with a neurology Registrar at Queen Elizabeth Hospital, Woolwich, in November 2024 and the promise of a follow-up … which never happened.
I waited until June this year … and then I contacted the hospital to find up when the follow-up was likely to take place. The reaction was a sort of ‘Oops! Sorry! We should have been in contact’. I was then given an appointment at midday on 14th August (i.e. last Thursday).
A couple of days beforehand, I received a text informing me that my appointment had been moved to 11.50am. Sue and I arrived at the outpatient clinic at the Queen Elizabeth Hospital in plenty of time for the appointment, booked in, and sat in the waiting area … and waited … and waited … and waited.
We finally saw a different Registrar from the last time over ninety minutes after our allotted appointment time. He apologised for the delay (apparently he had been massively overbooked) and then did an extensive series of tests on my arms, legs, and feet to check on what I could and could not feel and how much movement I had.
In conclusion, he said that there had been some improvement (which was good news), that they still had no idea why I had developed axonal polyneuropathy (no great surprise as most people who develop it are alcoholics with untreated diabetes … and I am neither), and that there was no need for any follow-up (which was a bit of a surprise). Apparently, there is no treatment and my best course of action was to carry on with the exercise regime I had been following for the last year. He also told us that I could ask for a further referral if I felt my condition was worsening … but that if I did, there was a year-long waiting list!
So, I’m stuck with a medical condition that affects my mobility and for which there is no treatment. It might improve and is unlikely to get worse, especially if I continue to exercise. I might qualify for some additional physiotherapy… which might help. On the plus side, at least I have an answer. It might not be the answer we hoped for, but now I can draw a line under this ailment and get on with my life.
Prorsum et Sursum! (My college's motto, which translates into English as Onwards and upwards!)
The title of this blog post has its origins in the half-remembered lyrics of a song that I heard as a child, SHORTNIN’ BREAD. It began life as an American folk song that probably had its origins as an African-American plantation song.
The original (and incorrectly remembered) lyrics included the lines:
Three little children, lying in bed
Two was sick and the other 'most dead
Send for the doctor and the doctor said
“feed them children on short'nin' bread"
According to Wikipedia, the song was collected in East Tennessee by E C Perrow in 1912. The traditional chorus of the song is:
Mammy's little baby loves short'nin', short'nin'
Mammy's little baby loves short'nin' bread (repeated)